Siyona Shrestha got the most expensive medicine in the world

Senior Pediatrician Siyona Shrestha, daughter of Sandeep Shrestha and nurse Alina Gurung, has been battling spinal muscular atrophy for almost a year and a half. The treatment of the disease was not possible in Nepal but only in the United States.

Siyona Shrestha has received the world most expensive drug, Gene Therapy Jolgins, under the Norvatics Company’s Managed Access program. Siyona parents have given credit to all Nepalis for using the most expensive medicine in the world and for reviving their daughter. Siyona Shrestha father, Dr. Sandeep Shrestha and mother (nurse) Alina Gurung have said this while writing a long status on social media.

“It simply came to our notice then. We have all reaped the fruits of our labor. Anything that is impossible and difficult can be accomplished by moving forward with determination and positive thinking.

After nearly 15 months of hard work and patience, Siyona Nani has finally received the world’s most expensive drug, Gene Therapy ZOLGENSMA, under the Novartis Company’s Managed Access Program (compassionate use). This is the victory of all of us. We, the Siyona family, will be grateful to all of you for your activism, goodwill and virtue towards the Siyona family.

There is still much work to be done. I have a responsibility not only to my family but also to many other children and patients. ‘What is spinal muscular atrophy? Senior Pediatrician Dr. According to Sandeep Shrestha, spinal muscular atrophy is a type of genetic disease. This disease is especially prevalent in children with intoxication and dehydration.

Senior Pediatrician Dr. Sandeep Shrestha said, “Simply put, it is the muscle that moves the baby’s body, but it dries up.” Therefore, the initial symptoms are that the child is not able to stand on his head in time, cannot sit, cannot walk, as the child grows up, it becomes difficult for him to eat, even when he eats, and it becomes difficult for him to breathe slowly.